Society for Participatory MedicineResearch
We welcome submissions for this section of JoPM. Research Articles describe research studies using qualitative, quantitative, experimental, survey, and innovative multi-methodological designs to rigorously test hypotheses about the prevalence and impact of participatory medicine and interventions to facilitate it.
Research, Vol. 7, 2015
Participatory Group Prenatal Education Using Photonovels: Evaluation of a Lay Health Educator Model with Low-Income Latinas
Susan J. Auger, Sarah Verbiest, James V. Spickard, Florence M. Simán and Mélida Colindres | December 1, 2015
A participatory prenatal education program can foster health literacy and empowerment among low-income Latinas, according to this study. The authors examined the effectiveness of a program in which trained lay educators facilitated groups using photonovels and experiential learning activities.
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What Do People Want from Their Health Care? A Qualitative Study
Leana S. Wen and Suhavi Tucker | June 25, 2015
The doctor-patient relationship remains at the heart of people’s perceptions of health care, and innovations in patient-centered medicine should aim to strengthen this relationship.
Read MoreResearch, Evidence, Vol. 7, 2015
Exploring an American Indian Participatory Medical Model
Michelle Marie Jacob, Mary Jo Poole, Kelly Gonzales, Haver Jim, Glen E. Duncan and Spero Manson | May 30, 2015
Racial and ethnic identity are critical considerations in health interventions. The relationship between ethnic identity and medical mistrust leads to poor adherence and poor outcomes, including low level of patient satisfaction. The authors’ findings indicate that respect for ethnic identity and culture may help to alleviate medical mistrust and increase patient satisfaction.
Read MoreResearch, Evidence, Vol. 7, 2015
Text Messaging Improves Participation in Laboratory Testing in Adolescent Liver Transplant Patients
Rebecca B. McKenzie, William E. Berquist, Megan A. Foley, Jered E. Windsheimer, K.T. Park and Iris Litt | May 22, 2015
Self-care remains an important goal in the current health care and patient community, as demonstrated by this study.
Read MoreResearch, Vol. 6, 2014
Evaluation of a Multistate Public Engagement Project on Pandemic Influenza
Denise Bulling and Mark DeKraai | March 8, 2014
This study used a participatory model to evaluate six CDC-funded public-engagement initiatives pertaining to pandemic influenza. The authors describe the evaluation process and share lessons learned that may be useful in evaluating public engagement processes in general.
Read MoreResearch, Vol. 6, 2014
Do You Hear What I Hear? Communication Practices about Medications Between Physicians and Clients with Chronic Illness in Canada
Kim Sears, Andrea Bishop and Neil J. MacKinnon | January 15, 2014
This study identifies areas where physicians and adults living with chronic illness should improve communication to promote safe medication use: in briefing clients about their medication; the level of communication between physicians and clients, and the access clients have to physicians and the use of new technology for communication.
Read MoreResearch, Vol. 5, 2013
Viewing Laboratory Test Results Online: Patients’ Actions and Reactions
Kate Christensen and Valerie M. Sue | October 3, 2013
This study of more than 1,500 patients who used a patient portal found that they are usually relieved, appreciative, satisfied, or even happy to view their lab test results online. The results also show a positive influence of prior physician-patient communication on patients’ reactions and their followup actions.
Read MoreResearch, Vol. 5, 2013
The Influence of an Audiovisual Intervention on Patient Experience in a Digital X-Ray Room
Laura Klaming, Marjolein Van der Zwaag, Daisy Van Minde and Harm Geraedts | September 11, 2013
Undergoing an x-ray can be stressful for certain patients. This study shows that patients’ stress can be alleviated by an audiovisual intervention (ie, distraction) with appropriate up-front information about it.
Read MoreResearch, Evidence, Vol. 5, 2013
Nonverbal Interpersonal Interactions in Clinical Encounters and Patient Perceptions of Empathy
Enid Montague, Ping-yu Chen, Jie Xu, Betty Chewning and Bruce Barrett | August 14, 2013
The authors show that eye contact and social touch are significantly related to patient perceptions of clinician empathy. This is an important design consideration for clinical environments, where the health IT interface may preclude eye contact between clinicians and patients.
Read MoreResearch, Vol. 5, 2013
Consumer Responses to Online Decision Aids for 3 Preference-Sensitive Health Problems
Katy Magee, Julie Cabinaw and Janet Reis | July 31, 2013
Studies on decision aids used with patients and their physicians have shown that patients have a higher level of satisfaction with the care received and decisions made, but data are scant on how consumers view the quality or usability of health information that they discover in their online searches outside the domains of a research study or clinical setting. This study examines user responses to decision aids for three preference-sensitive conditions (statins for high cholesterol, aspirin for low back pain, and MRI for low back pain).
Read MoreResearch, Vol. 5, 2013
Exploring Patient-Centered Handoffs in Surgical Oncology
Nancy Staggers, Marge Benham-Hutchins, Luciana Goncalves and Laura Langford-Heermann | July 10, 2013
Handoffs, the transfer of responsibility from one provider to another, commonly occur strictly between clinicians and exclude patients. Little is known about patients’ thoughts and desires regarding their participation in this process. This study examines handoffs from the patients’ perspective.
Read MoreResearch, Vol. 5, 2013
Structuring Patient Advocates’ Appraisal and Evaluation of Health Research and Quality of Care
G.J. Teunissen, M.A. Visse, W.I. de Boer and T.A. Abma | April 18, 2013
This study identifies the basic “issues that matter” to patients in clinical and research settings, with the goal of helping patients to better evaluate quality of care and health research.
Read MoreResearch, Vol. 5, 2013
Identifying Design Considerations for a Shared Decision Aid for Use at the Point of Outpatient Clinical Care: An Ethnographic Study at an Inner City Clinic
Negin Hajizadeh, Rafael E. Perez Figueroa, Lauren M. Uhler, Erin Chiou, Jennifer E. Perchonok and Enid Montague | March 6, 2013
This study identifies several potential opportunities for the design and implementation of a computerized decision aid for an inner city clinic and for other outpatient clinical environments. The findings can inform the design and implementation of computerized decision aids for shared medical decision-making and inform the design of health information technologies for a wide range of clinical contexts.
Read MoreResearch, Vol. 5, 2013
Mindfulness, Self-Care, and Participatory Medicine: A Community’s Clinical Evidence
Brant Rogers, Michael Christopher and Zeynep Sunbay-Bilgen | February 20, 2013
Along with a growing body of studies documenting the effectiveness of mindfulness-based learning interventions, the authors’ findings demonstrate the ecological validity of mindfulness practice in the domain of participatory health care.
Read MoreResearch, Vol. 5, 2013
What Patients Observe about Teamwork in the Emergency Department: Development of the PIVOT Questionnaire
Beverly W. Henry, Deborah M. Rooney, Susan Eller, Danielle M. McCarthy, Nicholas P. Seivert, Anna P. Nannicelli and John A. Vozenilek | January 30, 2013
This study appears to confirm that patients’ comments about health care services can extend beyond their satisfaction with the care they received. Expanding our understanding of patients’ awareness of team interactions may support efforts to improve teamwork processes that align with a patient-centered approach.
Read MoreResearch, Vol. 4, 2012
Impact of an EMR-Based Daily Patient Update Letter on Communication and Parent Engagement in a Neonatal Intensive Care Unit
Jonathan P. Palma, Heather Keller, Margie Godin, Karen Wayman, Ronald S. Cohen, William D. Rhine and Christopher A. Longhurst | December 31, 2012
This study found that using EMR data in the form of a daily patient update letter for parents of neonatal intensive care unit (NICU) patients resulted better communication and improved parents’ perceived competence to manage information in the NICU.
Read MoreResearch, Vol. 4, 2012
The Many Faces of Patient Engagement
Jennifer Gallivan, Katharina Kovacs Burns, Mandy Bellows and Carol Eigenseher | December 26, 2012
This study was conducted to gain a more clear understanding of the term “patient engagement” and what it means to different stakeholders in different health settings.
Read MoreResearch, Vol. 4, 2012
Examining a Proactive Self-Care Index in a Mindfulness-Based Stress Reduction (MBSR) Program
Zeynep Sunbay-Bilgen, Michael Christopher and Brant Rogers | September 30, 2012
Proactive self-care is a fundamental element of the Participatory Medicine model. Few indices measure self-care, and research about interventions that enhance self-care is sparse. This study aimed to develop a simple, direct measure of the dimension of proactive self-care in medical settings for use in research about participatory medical interventions.
Read MoreResearch, Vol. 3, 2011
Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices
Linda M. Gallant, Cynthia Irizarry, Gloria Boone and Gary L. Kreps | October 31, 2011
This study finds that the convergence of interactive media formats with web-based communication tools will likely enhance e-patient education and promote patient involvement in ways that alter traditional health care interactions, and may lead to enhanced levels of participatory medicine.