Spotlight
About the International Alliance of ALS/MND Associations
The International Alliance is the peak body for national organisations who support people living with ALS/MND. The Alliance has undertaken several initiatives, including publication of background documents, created two awards, and initiated bursaries to assist members to attend the International Alliance meeting and a Support Grant to support the formation of new Associations, or the establishment of recently formed Associations.
- More about the International Alliance
- Resources: Chat room
The Directory
Alliance members come from all over the world, and are listed in the Directory. The Directory provides information about the services provided by each organisation, and the means of contacting them.
- ALS/MND Directory
ALS/MND Annual Meeting
The International Alliance holds an annual meeting for members to meet and share advances in supporting people living with ALS/MND. Held in conjunction with the Annual Symposium on ALS/MND, the meeting is an excellent opportunity to discuss patient care, organisational development and planning, funding, and the role and activities of the International Alliance and its Board of Directors.
Please enjoy our site. We hope it improves your knowledge and understanding of ALS/MND and meets your information needs.
Board of Directors
International Alliance of
ALS/MND Associations
ALS/MND
ALS and MND are abbreviations for Amyotrophic Lateral Sclerosis and Motor Neurone Disease respectively. ALS/MND is a neurological disease that affects over 350,000 of the world’s population, and kills over 100,000 every year.
More about ALS/MND >
About the International Alliance of ALS/MND Associations
The International Alliance is the peak body for national organisations who support people living with ALS/MND. The Alliance has undertaken several initiatives, including publication of background documents, created two awards, and initiated bursaries to assist members to attend the International Alliance meeting and a Support Grant to support the formation of new Associations, or the establishment of recently formed Associations.
- More about the International Alliance
- Resources
The Directory
Alliance members come from all over the world, and are listed in the Directory. The Directory provides information about the services provided by each organisation, and the means of contacting them.
- ALS/MND Directory
ALS/MND Annual Meeting
The International Alliance holds an annual meeting for members to meet and share advances in supporting people living with ALS/MND. Held in conjunction with the Annual Symposium on ALS/MND, the meeting is an excellent opportunity to discuss patient care, organisational development and planning, funding, and the role and activities of the International Alliance and its Board of Directors.
- Meetings
Please enjoy our site. We hope it improves your knowledge and understanding of ALS/MND and meets your information needs.
Board of Directors
International Alliance of
ALS/MND Associations
Latest news
2 -3 December 2012 - The Annual Meeting of the International Alliance of ALS/MND Associations brings together ALS/MND Associations from around the world to share initiatives and develop strategies for fighting ALS/MND. Attendance is encouraged for all Alliance members and people living with ALS/MND are welcomed as observer/participants in the meeting.
The meeting immediately precedes the 23rd International Symposium on ALS/MND and will be held in Chicago, USA. The meeting program is as follows:
- 1 December 2012 - Board of Directors meeting
- 2 December 2012 - Annual General Meeting
- 2 -3 December 2012 - Annual Meeting of the Alliance
The online registration form is now available.
For more information go to our meeting category on the website or click here
The Alliance Meeting in Sydney was held the 27 and 28 of November 2011 at the Hilton Hotel in Sydney, Australia. We kindly ask the delegates at the meeting to rate the following with Poor - Average - Good - Excellent and provide additional comments.Please send your answers to alliance@alsmndalliance.org and provide your name and the name of your organisation.
1. the value of the meetings
2. the content of the meetings
3. the presentations
4. the Ask the Experts session
5. the quality of the Delegate Pack
6. the administration before the meeting
7. the meeting rooms
8. the accommodation
9. the catering
10. the service
Thank you for helping us provide the most effective Meetings by answering these questions.
Please feel free to send any additional comments about the Annual Meeting in general.
The Annual meeting of the International Alliance of ALS/MND Associations will start next Sunday the 27th of November at the Hilton Hotel in Sydney. This is a two day meeting where ALS/MND Associations from around the world to share initiatives and develop strategies for fighting ALS/MND.
Here you can download the Agenda for Day 1 and for Day 2:
Annual Meeting 27 Nov Agenda
Annual Meeting 28 Nov Agenda