Multiple Myeloma: Saying Thanks and Hanging On

Posted on by Paula Kiger
6

March 15, 2015, was a chilly day to walk 13.1 miles as part of the United Airlines NYC Half. At about 12.5 miles, Mary Jane managed to convince me to take off my red sweatshirt so my purple Team in Training singlet (and race number) would show in the finish line pictures. I had been trying for about a mile to reposition my number from the sweatshirt to my singlet in order to make the change, but my fingers were frozen and uncooperative.

She took things under control and did the pinning duties for me (being at a different angle seemed to be part of the equation of solving this conundrum) and we were able to cross in a unified line of purple!

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Team SOAR at the finish.

The road to this finish line began in November 2014, when I decided that what I wanted for my 50th birthday was for my family to send me to New York City in March 2015 to be part of Team SOAR. This would mean raising $2,500 for The Leukemia and Lymphoma Society (LLS). (For more on how, where, and why, click here, here, here, and here.)

The road to March 15 was paved with efforts on several fronts:

Training

A March 15 half-marathon, which I knew I would be walking or doing at a very manageable pace, fit in very well with my training plan. I kept up my training via my team, KR Endurance, which essentially boiled down to two weekday runs per week as planned out in a build/recovery model by my coach Kristie Cranford, a longer run on weekends, cross-training and/or yoga the other three days, and a rest day. (The only bump in the road was the cardiac oddness that happened throughout but I persevered!) I enjoyed representing Team in Training in several races as I prepared, including the Swamp Forest Trail Race in January and the Run for the Cookies in February with my awesome friends Suzanne and Laura.

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Fundraising

There are so many causes out there deserving of our time, money, and support. I wish I could give to them all. In choosing to fundraise for the Leukemia and Lymphoma Society, I chose a cause that is personal to  me, because it affects a close friend, as well as acquaintances and people I will never know. Refusing to choose because there are too many options is a not a choice that sits well with me. Therefore, I will pray every deserving cause receives adequate support and I will give every ounce of time, money, and support I can to this one.

I do not find it easy to fundraise. I don’t like being told “no.” Fundraising is not something I consider my strength. However, I do admit to liking the challenge and this is one of those areas in life where I will become a better, stronger person for having ventured outside of my comfort zone. Here is how my fundraising for this event came together:

The Tequila Social

On Saturday, February 7, 2015, Madison Social hosted a Tequila Social for the cause. It was such a fun time and they paid such close attention to small details that enabled every attendee to have a good time. Madison Social donated a generous portion of each ticket sold to LLS, as well as an additional donation.  I am so thankful to this local business with a big heart for its community. They deserve your patronage and enthusiasm. Thank you, Madison Social.

(I also want to thank the Tally Connection for hosting a giveaway of two tickets to The Tequila Social, and for making a donation for every comment that was made on their giveaway post.)

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The placemats explaining the three tequilas.

Benefit Workout at Badass Fitness

Shannon Colavecchio, owner of Badass Fitness, hosted a “couples workout” and donated the proceeds to the Leukemia and Lymphoma Society. A fun time was had by all (not that we necessarily would have said that mid-shockwave)!

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Superbowl Squares

I did a Superbowl Squares event which culminated (of course!) on Superbowl Sunday. A couple of the winners donated at least a portion of their proceeds back to me! How nice was that?

Frequent Asking

I did a lot of asking/reminding/pleading via my blog and my other social media outlets. Thank you to those of you who stuck with this “One Note Paula” throughout that time.

When I was talking with Mary Jane on the way to Central Park for the start of the half marathon the morning of March 15, we were discussing our team goal of $100,000, and the fundraising process, especially how to approach corporate donors. Since her diagnosis of Multiple Myeloma a few years ago, and her subsequent choice to be involved in Team in Training (and her rapid ascendancy to mentor/superstar which surprises no one), she has, she said, learned the following:

“I ask everyone.”

Pretty good advice, I’d say.

Charity Miles

I was already a Charity Miles user prior to committing to this event, but between my November decision to do the United Airlines NYC Half and the event itself, I did almost all of my miles for LLS. Twenty-five cents from every walked/run mile went to LLS. It didn’t go to my Team SOAR fund specifically, but it went to the greater goal of research, support, and advocacy. I also hope it raised awareness every time I posted my Charity Miles for LLS to social media.

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Special Thank-Yous

An analysis of the donations made to LLS as part of my fundraising lists 54 entries. Fifty-four individuals/businesses who gave in order to help me achieve my goal. I appreciate Kellie, my first donor, whose sister had been diagnosed with lymphoma. I thank Jon, whose donation came in while I was out on a training run, after which I came home to an email informing me I had reached my goal. And I thank EVERYONE IN BETWEEN! All of you have a special place in my heart!

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My fellow Idiots Running Club (IRC) members deserve a shout-out. The number of “Idiots” among the 54 donors is disproportionately high and that’s fine with me!

Speaking of Idiots (as in IRC), Amie of JunieBalloonie went to great lengths to make my effort bloom! Her custom-designed flowers are beautiful, and her creations for Team SOAR, LLS, and Team in Training, from which a portion of proceeds goes back to the cause, were no exception! (To inquire about purchasing a TNT or LLS flower, click here.)

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I also appreciate Greg Angel and Shannon Colavecchio, who gave me some excellent late-in-the game PR advice when I was making a final push to get the word out about The Tequila Social.

WTXL also helped out tremendously by having me on their noon show the day before The Tequila Social!

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Max Tsaparis, Me, Kellie Bartoli

Being a Florida-based runner on a Long Island-based team, I had the opportunity to work with two chapters of the Leukemia and Lymphoma Society. Thank you to the Long Island Chapter and the Northern and Central Florida Chapter for your help!

I have been impressed all along with the coaching and mentoring received from Team in Training. In addition to the pre-race communication (emails and encouragement), numerous coaches checked in with Mary Jane and me throughout the race. They gave specific advice about technique, helped us find the best restroom (yay!), and kept us talking as the miles clicked by.

My family also deserves a “thank you.” Each of them sacrificed in different ways, including my husband and son who did the duties of eldercare for my father-in-law with one-third of the team missing, and my daughter who loves going to New York with me but couldn’t make this trip.

Remembering The Reason Why

In the midst of all the running, walking, fundraising, Facebooking, Tweeting, Google+ing, Instagramming, and blogging, I never want to lose sight of the actual individuals behind the efforts. So many people told me their personal stories over the course of this few months. I thank you all for informing me and helping me understand the impact of blood cancers on your lives.

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Lynne is a survivor who came to The Tequila Social and quickly became a friend.

And of course Mary Jane, who was one of the first people to befriend me when I started working at Fordham University in 1989 and has remained such a treasured friend.

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What is Next?

When I started this process, I viewed it as a “one and done.” I saw it as an endeavor that would allow me to support Mary Jane, combine an athletic cause with an altruistic one (as I love to do), and go to New York City (which I really, really, REALLY love to do!).

I have come to internalize in a way I did not prior to this event, though, that blood cancers are not a “one and done” for the people living with them, or for their families and  friends.There are people out there “hanging on for a cure,” like Mary Jane…

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….and I intend to “hang on” with them.

What This Means Exactly

While I have not decided exactly what this means, I know:

1) Team SOAR set a goal for itself of raising $100,000. We accomplished an awesome $64,643.03 and were the second-place fundraisers of the NYC Half Marathon LLS Teams. The team fundraising page will be open for a few more weeks. Feel free to get us closer to $100K!

2) I will be doing the Light the Night Walk here in Tallahassee on November 12, 2015. In the interest of not diluting Team SOAR’s work, I will hold off on posting my fundraising link (but never fear — it will come!!!).

3) I will target a “big” event in 2016 for Team in Training/LLS. I don’t know if I will be fortunate enough to go to New York again, but I will find a way to “hang on” along with Mary Jane and others.

The intent of all these words is to say, in as sincere and heart-felt a way as possible:

THANK YOU

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Posted in Causes | Tagged Badass Fitness, Cardiac Issues, Central Park, Charity Miles, Facebook, Google, Greg Angel, Idiots Running Club, Instagram, Junie Balloonie, KR Endurance, Kristie Cranford, Leukemia and Lymphoma Society, Light the Night Walk Tallahassee, Long Island Chapter LLS, Madison Social, Mary Jane Conlon Reilly, Northern and Central Florida Chapter LLS, Run For the Cookies, Shannon Colavecchio, Swamp Forest Trail Race, Tagxedo, Tally Connection, Team in Training, Team SOAR, The Tequila Social, Twitter, United Airlines NYC Half, WTXL | 6 Replies

Making a Difference: How Soon is Now?

Posted on by Paula Kiger
6

HOW SOON IS NOW?

When I was running recently, the lyrics to one of the songs on my Playlist were “How Soon is Now?”

Since I became a Shot at Life Champion in 2013, and a Champion Leader in late 2014, I have learned a lot about vaccine-preventable diseases and the potentially fatal barriers children face in many countries. I have met incredible people, and seen I have seen government “at work.”

If it were up to me, I would take a plane across the world and personally administer a child in Nigeria, Afghanistan, or Pakistan, the three countries where polio still exists, a life-saving vaccine. I would put together the $20 worth of vaccines that will give lifetime immunity from measles, polio, pneumonia, and diarrhea to the children who are currently dying every 20 seconds from those diseases and just do it.

The problem: simply vaccinating children is not simple.

Simply vaccinating children takes the intricately coordinated efforts of people in the affected countries, manufacturers who make the vaccines, vehicles who transport the vaccines, copious amounts of funding, and an alphabet soup of accounts and programs including UNICEF, GAVI, CDC, and USAID. “Simply” vaccinating children a world away takes the involvement of us here in the United States. Although there are many reasons, three of the main ones are:

  • the existence of these diseases anywhere is a threat to children everywhere (as we have seen with recent US-based measles outbreaks)
  • prevention is infinitely more cost effective than treatment
  • it is the right thing to do.

As a Champion and Champion Leader, I have had many great experiences in two short years:

Two Shot at Life Summits in Washington DC

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With fellow champions Nicolette Springer and Sili Recio in March 2014

Meetings in the Washington, DC, offices of my Senators and Representatives

Meetings in the Tallahasssee, FL offices of my Senators and Representatives

In-Depth training on vaccine-preventable diseases, advocacy methods, and communication strategy

Meeting Jo Frost of Supernanny fame

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Meeting other Shot at Life Champions who are hands down among the most committed, intelligent, creative, funny people on the planet

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Publication of two Op-Eds, including this one, and a Letter to the Editor in the Tallahassee Democrat

An appearance on WTXL to discuss World Immunization Week 2014 (tune in again on Monday, April 27, between 6 am and 7 am for this year’s appearance!)

In the midst of all these opportunities, I can grow frustrated though. It is easy for doubt to seep in:

  • How will this lovely hotel luncheon/fancy hors d’ouerves event/[insert very first-world goodie or experience here] make a difference?
  • How will that e-mail, letter, phone call, or tweet I sent to my legislator matter?
  • How can I, “just a mom,” do anything for that child in Pakistan?

I recently read A Simple Idea With Huge Potential by Mark Miller, and his post helped me channel those worries in a different, more productive way. Mark described a plan to accelerate his team’s performance by “assigning a champion to each large body of work.” Among the attributes expected of his “champions” was this:

Ensure the work gets done. 

I may not be able to travel to Pakistan to vaccinate a child personally, but I can develop the expertise to make sure our government supports the President’s budget fully so that funding and support for critical global health and global vaccine programs is sustained.

I can inform, advocate, and fundraise for the cause of global vaccination.

I can recruit fellow committed, intelligent, creative, funny people to join me. Heck, you don’t even have to be funny!

We are holding a Champion Training this Wednesday night, April 29, from 8-9:30 p.m.. Please join us, even if you aren’t sure you want to commit to being a champion. It will be a fantastic opportunity to learn more! Click this link to sign up and get on the distribution list for the April 29 call.

I may not be able to completely fix the problem now, but I can commit to being a champion for ensuring the work gets done.

WHO WANTS TO JOIN ME?

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Shot@Life–UN Foundation, Mozambique, Wednesday, June 1, 2011 (Photo/Stuart Ramson)

I am joining my fellow Shot at Life Champions in Advocate 2 Vaccinate, a coast-to-coast challenge for global vaccination that coincides with World Immunization Week (April 24-30). I am pleased to be joining several of them in a blog relay. Here’s the lineup:

Friday, April 24: Jennifer DeFranco with Let the Relay Begin…S@L, A2V, and Me! 

Friday, April 24: Nicole Morgan with Want to be a Super Hero?

Saturday, April 25: Nicolette Springer with Advocate to Vaccinate: You Can Be a Champion! 

April 26 – Pam Brown Margolis with It’s World Immunization Week! Let’s Keep My Little Readers Healthy #vaccineswork #WIW15 and ME!

April 27 – Cindy Levin with Many Actions Save Many Lives

April 29 – Ilina Ewen with Advocate2Vaccinate During World Immunization Week