Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.
| Jan 8 | New Mobile App for Healthcare Professionals Facilitates Diagnosis of Marfan Syndrome and Related DisordersThe Marfan Foundation announced today the launch of Marfan DX, a mobile phone application to aid healthcare professionals in the diagnosis of Marfan |
| Dec 16 | Legislative Action Alert: Educational Briefing on Marfan Syndrome and Heritable Connective Tissue DisordersThe Marfan Foundation is asking its Marfan syndrome and related disorders community to ask their House Representative’s and Senator’s staff on |
| Dec 7 | The Marfan Foundation Adds Licensed Clinical Social Worker to its Senior Staff to Enhance Patient ServicesThe Marfan Foundation has named Susan Leshen, LCSW, the senior director of patient and program services and volunteer leadership, a new position at |
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