Evidence
Research, Vol. 7, 2015
Participatory Group Prenatal Education Using Photonovels: Evaluation of a Lay Health Educator Model with Low-Income Latinas
Susan J. Auger, Sarah Verbiest, James V. Spickard, Florence M. Simán and Mélida Colindres | December 1, 2015
A participatory prenatal education program can foster health literacy and empowerment among low-income Latinas, according to this study. The authors examined the effectiveness of a program in which trained lay educators facilitated groups using photonovels and experiential learning activities.
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What Do People Want from Their Health Care? A Qualitative Study
Leana S. Wen and Suhavi Tucker | June 25, 2015
The doctor-patient relationship remains at the heart of people’s perceptions of health care, and innovations in patient-centered medicine should aim to strengthen this relationship.
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Exploring an American Indian Participatory Medical Model
Michelle Marie Jacob, Mary Jo Poole, Kelly Gonzales, Haver Jim, Glen E. Duncan and Spero Manson | May 30, 2015
Racial and ethnic identity are critical considerations in health interventions. The relationship between ethnic identity and medical mistrust leads to poor adherence and poor outcomes, including low level of patient satisfaction. The authors’ findings indicate that respect for ethnic identity and culture may help to alleviate medical mistrust and increase patient satisfaction.
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Text Messaging Improves Participation in Laboratory Testing in Adolescent Liver Transplant Patients
Rebecca B. McKenzie, William E. Berquist, Megan A. Foley, Jered E. Windsheimer, K.T. Park and Iris Litt | May 22, 2015
Self-care remains an important goal in the current health care and patient community, as demonstrated by this study.
Read MoreReviews, Vol. 6, 2014
The Challenges of Conceptualizing Patient Engagement in Health Care: A Lexicographic Literature Review
Serena Barello, Guendalina Graffigna, Elena Vegni and A. Claudio Bosio | June 11, 2014
The term “patient engagement” is at risk of becoming a vague buzzterm, as it lacks a shared definition. This paper aims to pinpoint the key conceptualizations of “patient engagement” from recent academic literature, in order to deepen understanding of the term.
Read MoreCase Studies, Vol. 6, 2014
Lessons Learned from Implementing a Multi-Year, Multi-Project Public Engagement Initiative to Better Inform Governmental Public Health Policy Decisions
Roger Harvey Bernier | May 22, 2014
The author outlines lessons learned from a CDC initiative on public engagement and public policy decision making.
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Case Abstracts of a Multi-Year, Multi-Project Public Engagement Initiative to Better Inform Governmental Public Health Policy Decisions
Roger Harvey Bernier and Caitlin Wills-Toker | May 22, 2014
This paper examines a CDC initiative aimed at developing a feasible method of engaging the public that would better inform agency or sponsor decision making in the short term and build trust between the agency or sponsor and the public over the longer term. The initiative succeeded in the short term, but no ongoing infrastructure devoted to public engagement was created to achieve similar results over the longer term.
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Evaluation of a Multistate Public Engagement Project on Pandemic Influenza
Denise Bulling and Mark DeKraai | March 8, 2014
This study used a participatory model to evaluate six CDC-funded public-engagement initiatives pertaining to pandemic influenza. The authors describe the evaluation process and share lessons learned that may be useful in evaluating public engagement processes in general.
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Do You Hear What I Hear? Communication Practices about Medications Between Physicians and Clients with Chronic Illness in Canada
Kim Sears, Andrea Bishop and Neil J. MacKinnon | January 15, 2014
This study identifies areas where physicians and adults living with chronic illness should improve communication to promote safe medication use: in briefing clients about their medication; the level of communication between physicians and clients, and the access clients have to physicians and the use of new technology for communication.
Read MoreResearch, Vol. 5, 2013
Viewing Laboratory Test Results Online: Patients’ Actions and Reactions
Kate Christensen and Valerie M. Sue | October 3, 2013
This study of more than 1,500 patients who used a patient portal found that they are usually relieved, appreciative, satisfied, or even happy to view their lab test results online. The results also show a positive influence of prior physician-patient communication on patients’ reactions and their followup actions.
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The Influence of an Audiovisual Intervention on Patient Experience in a Digital X-Ray Room
Laura Klaming, Marjolein Van der Zwaag, Daisy Van Minde and Harm Geraedts | September 11, 2013
Undergoing an x-ray can be stressful for certain patients. This study shows that patients’ stress can be alleviated by an audiovisual intervention (ie, distraction) with appropriate up-front information about it.
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Nonverbal Interpersonal Interactions in Clinical Encounters and Patient Perceptions of Empathy
Enid Montague, Ping-yu Chen, Jie Xu, Betty Chewning and Bruce Barrett | August 14, 2013
The authors show that eye contact and social touch are significantly related to patient perceptions of clinician empathy. This is an important design consideration for clinical environments, where the health IT interface may preclude eye contact between clinicians and patients.
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Consumer Responses to Online Decision Aids for 3 Preference-Sensitive Health Problems
Katy Magee, Julie Cabinaw and Janet Reis | July 31, 2013
Studies on decision aids used with patients and their physicians have shown that patients have a higher level of satisfaction with the care received and decisions made, but data are scant on how consumers view the quality or usability of health information that they discover in their online searches outside the domains of a research study or clinical setting. This study examines user responses to decision aids for three preference-sensitive conditions (statins for high cholesterol, aspirin for low back pain, and MRI for low back pain).
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Exploring Patient-Centered Handoffs in Surgical Oncology
Nancy Staggers, Marge Benham-Hutchins, Luciana Goncalves and Laura Langford-Heermann | July 10, 2013
Handoffs, the transfer of responsibility from one provider to another, commonly occur strictly between clinicians and exclude patients. Little is known about patients’ thoughts and desires regarding their participation in this process. This study examines handoffs from the patients’ perspective.
Read MoreCase Studies, Vol. 5, 2013
Divergent Care Team Opinions About Online Release of Test Results to an ICU Patient
Jonathan Sprague, Jonathan Pell and C.T. Lin | June 12, 2013
Are the principles of transparency and excellent patient care mutually exclusive? The authors examine a case history where a family caregiver and clinicians offer differing opinions on the wisdom of hospitals releasing online test results to inpatients in real time.
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Structuring Patient Advocates’ Appraisal and Evaluation of Health Research and Quality of Care
G.J. Teunissen, M.A. Visse, W.I. de Boer and T.A. Abma | April 18, 2013
This study identifies the basic “issues that matter” to patients in clinical and research settings, with the goal of helping patients to better evaluate quality of care and health research.
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Identifying Design Considerations for a Shared Decision Aid for Use at the Point of Outpatient Clinical Care: An Ethnographic Study at an Inner City Clinic
Negin Hajizadeh, Rafael E. Perez Figueroa, Lauren M. Uhler, Erin Chiou, Jennifer E. Perchonok and Enid Montague | March 6, 2013
This study identifies several potential opportunities for the design and implementation of a computerized decision aid for an inner city clinic and for other outpatient clinical environments. The findings can inform the design and implementation of computerized decision aids for shared medical decision-making and inform the design of health information technologies for a wide range of clinical contexts.
Read MoreCase Studies, Vol. 5, 2013
Challenges in Measuring Patient Participation: Case Studies from British Columbia’s Patients as Partners Initiative
Kelly McQuillen, Connie L. Davis, Kendall Ho, Patrick McGowan, Joyce Resin, Kimberley McEwan, Liza Kallstrom and Chris Rauscher | February 27, 2013
This article examines the implementation of the Patients as Partners initiative in British Columbia, which seeks to increase public engagement in health care, and the simultaneous development of coherent and practical measurements to gauge its success.
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Mindfulness, Self-Care, and Participatory Medicine: A Community’s Clinical Evidence
Brant Rogers, Michael Christopher and Zeynep Sunbay-Bilgen | February 20, 2013
Along with a growing body of studies documenting the effectiveness of mindfulness-based learning interventions, the authors’ findings demonstrate the ecological validity of mindfulness practice in the domain of participatory health care.
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