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A Good Weekend

7 days ago by Juan Magdaraog in Ramblings

This weekend has been a good one. Although I did not get to accomplish some of the things I had to do for work but I think I really needed a break.

I spent Saturday morning watching some tv shows I haven’t seen. I caught up on the latest season of “The O.C.”. At first I never thought I’d like this show but having seen the first season last year, I got hooked somehow. This season seems to be interesting. I also watched the latest episode of “Grey’s Anatomy”. Seriously, this is one of the best shows on air today. The writing is great. It’s on its third season and I’m still as interested if not more since the first time I watched it. In contrast with Desperate Housewives. I liked it at first but now, not so much.. Don’t know why. I just stopped watching it.

In the afternoon I ended up watching the World Pool Championships’ Quarter Finals and Semi Finals. Our very own Ronato Alcano powered through to make it to the finals.

I really wanted to get out of the house so I asked my friend Nes if he wanted to go out in the evening. He said they had a GK meeting in the afternoon but for me to join them for dinner afterwards. I said sure. I met them at Old Spaghetti House in Makati. I joined him and the other members of the GK Committee of our SFC chapter. We had dinner and set up an impromptu poker game at Ton’s house after. They had called some of our friends and asked if they wanted to play poker. So we did.

Now I’m not really a poker player. I played it several times in the past but it was the company I was after. We played poker till about 1:30 a.m. at which I decided to call it a night. I went home ahead of them and I found out today that they played till 3 a.m.

Sunday was another lazy day. I spent a the morning and a good part of the afternoon chatting with some friends. Carlo and I made a video to test out his Macbook Pro and an external iSight. Suffice to say we had nothing better to do and that’s why we did that.

I also chatted a bit with Eleanor. I had a very interesting conversation with her.

The rest of the afternoon was spent watching the finals of the World Pool Championships and I’m happy to say that Ronato Alcano brought pride to the Philippines by bagging the championship in an exciting match. He shot a 1 and 9 ball combination to win the tournament.

The highlight of my weekend was going to mass with my whole family. We finally after a long time were able to hear mass together. I usually didn’t go to the 8 p.m. evening mass because it was easier for me to go to an 11 a.m. mass in the club in front of our house. However this time I thought that I really wanted to hear mass with my mom, brother and dad at the 8 p.m mass in the church near our house. My dad serves at that mass and that’s why he doesn’t go to the 11 a.m. mass. My brother also hears mass with his girlfriend usually on Saturday evenings so he sometimes doesn’t go to the 11 a.m. or 8 p.m mass. Tonight we all went together.

It’s been awhile since I’ve been to that church. I was surprised to see that they installed air conditioners and sealed of the church. I’m sure this will be really handy during summer.

I prayed for several people. My family and friends who needed prayers. I hope that God hears my prayers for them and grant what’s best for all.

I guess it’s not really an exciting weekend compared to other people’s weekends but It was really nice for me.

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Ben Franklin's Advice

8 days ago by Juan Magdaraog in Ramblings

Carlo posted this on his blog. It’s a pretty funny story regarding one of America’s and perhaps the world’s most notable men in history.

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My Wish List

8 days ago by Juan Magdaraog in Ramblings

My friends Carlo and Nono started their own respective Christmas wish lists. So I thought I’d follow suit and start my own. Not that I expect it to come true but hey, you never know. I’ve modified it a bit. This will be my Christmas and Birthday Wish List. Sometimes it’s just good to list dreams and wishes down. Maybe one day you can look back at it and see if it came true.

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Chat With Mark

8 days ago by Juan Magdaraog in Ramblings

I just had a pleasant chat with Mark from Genzyme yesterday. No, it wasn’t about Genzyme or Myozyme. It was just a pleasant friendly conversation. He recently got an iMac and wanted to try doing video chat.

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23rd Infusion

12 days ago by Juan Magdaraog in Infusion

I’m here posting this entry just hours after I finished my 23rd infusion. This infusion is special because it marks my last infusion on the Expanded Access Program (EAP). Since Myozyme has been approved by the FDA, Genzyme has been transitioning EAP participants to other programs. Some patients have gone on to have their treatments covered by their insurance companies while there are some like me who have to apply to the ICAP or International Charity Access Program.

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Claiming It By Faith

14 days ago by Juan Magdaraog in Ramblings

We’re pushing through with the infusion on Tuesday. What’s the significance of that? Well I only have enough Myozyme for one more infusion. There’s some that’s on the way but it’s not here yet nor do I know when it will be here.

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Searching For Greatness

14 days ago by Juan Magdaraog in Ramblings

I’m turning 29 in a few weeks… Boy, 29… I know people will kill me when they read this but for me, 29 seems really old. Not just because of the physical years but I feel old simply because at 29, what do I have to show for it? Seriously…

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Half Marathon By Juan, Another Juan That Is

18 days ago by Juan Magdaraog in News

The Livermore Wine Stomp Half Marathon last Sunday saw a Juan participate in it. No not this Juan, but another great Juan. My uncle Juan (it’s a tradition for my family to name all their first born Juan, I’m actually the 4th Juan) joined the said half marathon. Now this is news or blog worthy for several reasons.

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22nd Infusion

26 days ago by Juan Magdaraog in Infusion

My 22nd infusion was a day earlier than originally scheduled. Tuesday was declared a national holiday. So they had to move my infusion one day ahead of schedule. Some parts of the hospital such as the pharmacy only have skeleton crews during holidays so my doctors were worried that we might not get decent attention on that day. So we decided to play it safe and move it one day ahead.

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Blog Redesign

28 days ago by Juan Magdaraog in Ramblings

I’m thinking of redesigning my Fight Pompe blog. Since I also write about other stuff that’s happening in my personal life, I’d like to integrate it all in one blog to keep things simple. Of course Fighting Pompe will alwaya be a big part of my personal life but there’s also other parts. I’d like to be able to write about other stuff too and keep things interesting.

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