Newborn Screening Research Tools
Virtual Repository of Dried Blood Spots
A centralized, web-based dried blood spot virtual repository and request management system
moreLaboratory Performance Database (R4S)
Adaptation of the Region 4 Laboratory Performance Database to support NBSTRN.
moreLong Term Follow-Up Data Collection
A solution for collecting, managing, and delivering LTFU data.
moreTogether we can make a difference.
Interested in participating on one of our committees? Do you know of a good venue for a presentation from the NBSTRN? Contact us.
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For Researchers >
The NBSTRN was developed as a resource for researchers more
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For Parents >
This section is organized into collection of useful resources more
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For NBSTRN Workgroups >
The NBSTRN is comprised of an advisory Standing more
What's New
- Global Rare Disease Patient Registry and Data Repository
- Critical Congenital Heart Disease Newborn Screening Demonstration Program
- Newborn Screening in the Genomic Era: Setting a Research Agenda
- HHS Secretary Adopts New Recommendation on Newborn Screening
- NBSTRN Newsletter
How Are We Doing?
Let us know how we are doing by completing a brief questionnaire about the NBSTRN.org website.
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